Support for Charlie and his family from the Early Support and Inclusion Service.
Charlie and his family moved to Kirklees at the start of the pandemic. He is a happy little boy who has a diagnosis of Angelman Syndrome.
Charlie’s parents were able to easily contact the relevant services to request support and initially advice was offered to the family before an early support assessment was carried out at their request.
Charlie’s sleep pattern is very disturbed, and he needs a high level of support throughout the day and night.
Following recommendations from the assessment, the family receive regular support via direct payments to pay for a personal assistant (PA) to meet the needs of Charlie and his younger brother, who also has some additional needs.
Stephen and Joanna feel the family support worker listened, shared information with them and had a good understanding of the family’s needs. The support then offered as a has made a massive difference to the whole family.
Meeting both Charlie and his brother’s needs is a challenge when one parent is out at work. Accessing community provisions with just one adult is impossible and having the support of a Personal assistant allows Charlie and his brother to get out and about safely, have fun and the family are less isolated. The wellbeing of all the family has improved because of this support. Charlie and his brother have enjoyed going to the park, soft play centres and out for lunch with their Mum or Dad and the PA.
For Joanna and Stephen, the choice of direct payments was important for them so they could choose a PA they felt suited their family and had the skills to understand and meet Charlie’s needs. Direct payments also allow some flexibility which suits their work commitments.
You can find out more about the Early Support and Inclusion service through their Local Offer page.